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External links are selected and reviewed at the time a page is published. However, GEC-KO is not responsible for the content of external websites. The inclusion of a link to an external website from GEC-KO should not be understood to be an endorsement of that website or the site’s owners (or their products/services).

Orphanet

A world search can be performed on orpha.net

Type Genetics in the mandatory field “Institution or laboratory name” if you do not know the name of the genetics centre and select your country.

Orphanet provides a reference portal for individuals with rare diseases, as well as their health service providers. Orphanet is led by an expanding consortium of over 35 countries, coordinated from France. 

More information on Orphanet (Canada) can be found at http://www.orpha.net/national/CA-EN/index/homepage/

 

Disclaimer

Currently, the website is attempting to meet the information needs of healthcare providers. As a result, when choosing content and terminology for the site, we have assumed that the reader has a certain amount of medical knowledge.

Healthcare providers must use their own clinical judgment in addition to the information presented herein. The authors assume no responsibility or liability resulting from the use of information on this website.

All healthcare providers using this site are encouraged to consult local genetics clinics, medical geneticists, or specialists for clarification of questions that arise relating to specific patient problems.

External links are selected and reviewed at the time a page is published. However, GEC-KO is not responsible for the content of external websites. The inclusion of a link to an external website from GEC-KO should not be understood to be an endorsement of that website or the site’s owners (or their products/services).

We strive to provide accurate, timely, unbiased and up-to-date information on this site, and make every attempt to ensure the integrity of the site. However, it is possible that the information contained here may contain inaccuracies or errors for which neither GEC-KO nor its funding agencies assume responsibility.

 

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